My youngest blessings are our youngest daughter Hannah who is sweet 16yo and has a rare chromosome deletion (1q 24.1-31.1). Taylor is our first grandchild born 9/1/08. Or first grandson Jonas was born 11/5/10 Taylor's little brother Logan was born 1/12/11
My loves
Monday, November 16, 2009
Touched By A Vampire by Beth Felker Jones
Touched by a Vampire
Author: Beth Felker Jones
Summary:
EXAMINING TWILIGHT THROUGH A BIBLICAL LENS
People around the world are asking the same question, enraptured with Edward and Bella’s forbidden romance in the Twilight Saga, a four-book serial phenomenon written by Stephenie Meyer. The bestsellers tell the story of a regular girl’s relationship with a vampire who has chosen to follow his “good” side. But the Saga isn’t just another fantasy–it’s teaching girls about love, sex, and purpose. With 48 million copies in print and a succession of upcoming blockbuster films, now is the time to ask the important question: Can vampires teach us about God’s plan for love?
Touched by a Vampire is the first book to investigate the themes of the Twilight Saga from a Biblical perspective. Some Christian readers have praised moral principles illustrated in the story, such as premarital sexual abstinence, which align with Meyer’s Mormon beliefs. But ultimately, Beth Felker Jones examines whether the story’s redemptive qualities outshine its darkness.
Cautionary, thoughtful, and challenging, Touched by a Vampire is written for Twilight fans, parents, teachers, and pop culture enthusiasts. It includes an overview of the series for those unfamiliar with the storyline and a discussion guide for small groups.
Thirsty by Tracey Bateman
Book: Thirsty
Author: Tracey Bateman
Summary:
There's no place like home, they say.
"Hello, I'm Nina Parker…and I'm an alcoholic."
For Nina, it's not the weighty admission but the first steps toward recovery that prove most difficult. She must face her ex-husband, Hunt, with little hope of making amends, and try to rebuild a relationship with her angry teenage daughter, Meagan. Hardest of all, she is forced to return to Abbey Hills, Missouri, the hometown she abruptly abandoned nearly two decades earlier–and her unexpected arrival in the sleepy Ozark town catches the attention of someone–or something–igniting a two-hundred-fifty-year-old desire that rages like a wildfire.
Unaware of the darkness stalking her, Nina is confronted with a series of events that threaten to unhinge her sobriety. Her daughter wants to spend time with the parents Nina left behind. A terrifying event that has haunted Nina for almost twenty years begins to surface. And an alluring neighbor initiates an unusual friendship with Nina, but is Markus truly a kindred spirit or a man guarding dangerous secrets?
As everything she loves hangs in the balance, will Nina's feeble grasp on her demons be broken, leaving her powerless against the thirst? The battle between redemption and obsession unfold to its startling, unforgettable end.
White Picket Fences by Susan Meissner
ABOUT THIS BOOK
When her black sheep brother disappears, Amanda Janvier eagerly takes in her sixteen year-old niece Tally. The girl is practically an orphan: motherless, and living with a father who raises Tally wherever he lands– in a Buick, a pizza joint, a horse farm–and regularly takes off on wild schemes. Amanda envisions that she, her husband Neil, and their two teenagers can offer the girl stability and a shot at a “normal” life, even though their own storybook lives are about to crumble.
Seventeen-year-old Chase Janvier hasn’t seen his cousin in years, and other than a vague curiosity about her strange life, he doesn’t expect her arrival will affect him much–or interfere with his growing, disturbing interest in a long-ago house fire that plagues his dreams unbeknownst to anyone else.
Tally and Chase bond as they interview two Holocaust survivors for a sociology project, and become startlingly aware that the whole family is grappling with hidden secrets, with the echoes of the past, and with the realization that ignoring tragic situations won’t make them go away.
Will Tally’s presence blow apart their carefully-constructed world, knocking down the illusion of the white picket fence and reveal a hidden past that could destroy them all–or can she help them find the truth without losing each other?
Shadow Government by Grant Jeffrey
ABOUT THIS BOOK
Security cameras, surveillance of your financial transactions, radio frequency spy chips hidden in consumer products, tracking of your Internet searches, and eavesdropping on your e-mail and phone calls. Without your knowledge or consent, every aspect of your life is observed and recorded. But who is watching the watchers?
An ultra-secret global elite, functioning as a very real shadow government, controls technology, finance, international law, world trade, political power, and vast military capabilities. Those who hold power are invisible to all but a few insiders. These unrivaled leaders answer to no earthly authority, and they won’t stop until they control the world.
In Shadow Government, Grant Jeffrey removes the screen that, up to now, has hidden the work of these diabolical agents. Jeffrey reveals the biblical description of Satan’s global conquest and identifies the tools of technology that the Antichrist will use to rule the world.
Your eyes will be opened to the real power that is working behind the scenes to destroy America and merge it into the coming global government. Armed with this knowledge, you will be equipped to face spiritual darkness with the light of prophetic truth.
Wisdom Hunter by Randall Arthur
ABOUT THIS BOOK
This rerelease of Randall Arthur's bestselling novel presents the hypocrisy of Christian legalism and a man's search for the only surviving member of his family. The story's hero, Pastor Jason Faircloth, embarks on a journey that lasts eighteen years and takes him through four countries in a quest to find the granddaughter who is being hidden from him. In a process that mirrors our own spiritual journey, he discovers a rich relationship with God and the peace that finally comes with true faith
For more info or to buy this book
http://www.randomhouse.com/catalog/display.pperl?isbn=9781601422996&ref=externallink_mlt_wisdomhunter_sec_0908_01
Sunday, October 18, 2009
The Sound of Sleigh Bells Book by Cindy Woodsmall
ABOUT THIS BOOK
Beth Hertzler works alongside her beloved Aunt Lizzy in their dry goods store, and serving as contact of sorts between Amish craftsmen and Englischers who want to sell the Plain people’s wares. But remorse and loneliness still echo in her heart everyday as she still wears the dark garb, indicating mourning of her fiancĂ©. When she discovers a large, intricately carved scene of Amish children playing in the snow, something deep inside Beth’s soul responds and she wants to help the unknown artist find homes for his work–including Lizzy’s dry goods store. But she doesn’t know if her bishop will approve of the gorgeous carving or deem it idolatry.
Lizzy sees the changes in her niece when Beth shows her the woodworking, and after Lizzy hunts down Jonah, the artist, she is all the more determined that Beth meets this man with the hands that create healing art. But it’s not that simple–will Lizzy’s elaborate plan to reintroduce her niece to love work? Will Jonah be able to offer Beth the sleigh ride she’s always dreamed of and a second chance at real love–or just more heartbreak?
this is a really good book that has you thinking about things the whole time...I really liked reading this book, it is full of surprises!
This book was provided for review by the WaterBrook Multnomah Publishing Group
For more info or to buy the book visit
http://www.randomhouse.com/catalog/display.pperl?isbn=9780307446534
Friday, September 25, 2009
taylor's allergy appt
Hannah has been having the hiccups a lot lately and I am not sure why. When she does get them, she can have as many as 7 times in 24 hours. She doesn't just get them once. I forgot to mention it to dr kyle when we had her MA review meeting.
Please pray for her nursing. Michele is on vacation for a week...mary is covering the fridays but that still leaves Sun, Tues & thurs not covered next week. Pray they can find coverage for those 2 nights.
Tuesday, September 8, 2009
Stray Affections Book Review
Cassandra Higgins always wanted to be a vet...but instead she is a mom to 4 boys...she buys an unusual snowglobe that leads her, her family and friends on one discovery afer another! You immediately feel like you know Cassandra and her family...Stray Affections "invites you to experience the laughter and healing of second chances"!
Here is the link to purchase this book
http://www.randomhouse.com/waterbrook/catalog/display.pperl?isbn=9780307458292
This book made me rethink a lot of priorities in my own life...I hope you enjoyed it as much as I did!
Wednesday, August 26, 2009
need prayer for nursing!
will try to update more later :)
Monday, August 17, 2009
Quintooples are giving away a water bottle...I love give aways
Quintooples is proud to giveaway one Kleen Kanteen with a sport top for you, or your back to schooler! These are not your ordinary re-usable water co...ntainer.Our 18 oz. Klean Kanteen is the safe, reusable bottle you’ll take with you everywhere...
http://www.quintooples.com/
Thursday, August 13, 2009
need to vent :)
I need to get a large gate to keep taylor out of the kitchen but can't even find time for that now..I did stop at walmart on the way home but they didn't have any wide ones, just for a standard door...if I go anywhere tomorrow, I have to take both girls...I could meet my mom but she can't really help me getting them in the car, she can just open the back end and push taylor...so it's a lot of lifting :( I need to get groceries too but the nurse doesn't come in til 10pm 2 nights...this is getting really old...
soory, guess I just needed to have a pity party :)
Tuesday, August 11, 2009
back from FL and Hannah's week
The whole point was for me to relax and pam and blue pam made sure that I did. blue pam gave up her bed for me. I did miss my family and it felt good to be home..can't be in 2 places at once :(
Hannah still seems to be fighting something, her secretions are still thick and a lot of them. Her temp goes up and down...I got home late friday night and sat I could tell that I was picking her up again...my back started aching again and all the old aches and pains came right back. I have fibromyalgia and some arthritis so having to deal with hannah and taylor takes a lot out of me.
Hannah's seizures are about the same. She hasn't been sleeping hardly at all the last 2 days but it looks like she is finally asleep now, at 5:30 in the afternoon :)
I am really frustrated about her dental...medical assistance changed their program for dental and now we can't take her to dupont where we do all of her other drs and services. I have called them and MA but no one can tell me anything. If we go out of pocket, it's $230! We can't afford that. I can't imagine taking her to a local dentist with all of her dental problems...she has a partially repaired cleft lip and palate and teeth coming in the wrong places. If she needs any kind of dental surgery and we go locally, I don't know how that would get done. Now, even her plastic surgeon is connected to dupont...please pray for that.
Taylor has decided today that walking just might be easier than crawling...she has been walking a lot more today. She will be 1yo on sept 1. She was born on labor day last year!
Gotta go, we have our LIFE cell group meeting here tonight...
Saturday, August 1, 2009
Hannah update and me going to FL!!!
A new concern is dental…MD medical assistance has changed their dental program and it looks like dupont is not accepting it now. I think it's important for her to have her dental work done there since that is where all her other drs are and if they need to pull teeth they can do it there. She has an appt on the 19th so pray that we can find a way to have her appt there.
Our nursing is better right now but our newest nurse is working the extra hours that we have and I am not sure she wants to do all of that permanently so please pray they can find a permanent replacement…thanks
Tuesday, July 14, 2009
Hannah is now 14 years old!
Chuck and I finally got a chance to get away overnight this past weekend...it was nice to get out of our normal routine even though it really wasn't long enough :)
We stopped the new seizure med, I didn't like the way it made hannah with the side effects...she was hyper all the time, constantly moving and not sleeping during the day...that is still not back to normal but she just had her last dose saturday night. Her seizures are about the same...this week we do have nursing coverage every night, Praise the Lord \o/ we do have a new nurse for friday nights..she seems to fit in well...
looks like we may have to find another nurse, Alice got hurt at another case and is in a lot of pain...she has too see her dr tomorrow and we think he is going to put her on disability. For the next 2 weeks she is only here 1 day but starting Aug 1 she is supposed to do 3 days a week here...so pray that they will be able to find a replacement if that happens. One of our old nurses would like to come back but she is the primary nurse on another case so the timing is not good.
I read on another blog about getting paid to advertise on blogs for different products, I laughed when I read hers about medical things (thanks Holly :)I could have made a fortune in the last 14 years with all the different things we have tried and used for Hannah LOL
Taylor is 10 months old now...she has been taking a few steps and can stand alone for a few minutes but when she realizes it she sits down :) It's getting hard to feed her, she breaks out when she eats any fruit but bananas and gets sick with milk products...the funny thing is her mommy never liked bananas even as a baby and still doesn't and they are taylor's favorite :) her favorite toy is her walk behind/ride on car...she pushes it sideways everywhere! she looks like a little old lady pushing her walker. I keep trying to get new pics of her but she is either moving too much or grabs for the camera. I will try to get some new pics up soon.
I realize how blessed I am...thanks for praying for us....
Friday, June 5, 2009
Hannah update
We did see the nurse practioner when we got to neuro and I asked her why we never see the dr, she said it's just the "luck of the draw" So I asked to see him, she said we would have to wait a long time and I told her I would wait...I didn't think it would take long since we were taking up a room and I had my mom, taylor and my nephew josh (4yo) with us :) she had already told us about a new med that had just come out called banzal. We started that last night. she also said that they last time we were there and went for bloodwork they didn't do all the levels...I felt rude almost saying that I didn't order the bloodwork or draw it, don't know why she was acting like it was my fault, I had it done there right after her appt last time :( we did bloodwork tues again...
The dr acted a little annoyed when he came in, but as we talked I think he understood whey I wanted to talk to him.
I told him that we had seen a lot of regression with her in the last year or so...she rarely laughs and smiles anymore and just doesn't seem as content as she used to be. She just looks tired all the time and either sleeps a lot or just sits there in a "daze". She is having more seizures and different kinds, she has to be cathed for urine retention, etc. He said that is a progression of her syndrome, kinda like alzheimers would do to a person. I asked him why no one had ever told us that before and he said that most parents don't ask or don't want to know. I think I always knew that in the back of my mind :( and I am very realistic with things pertaining to Hannah...
I had thought I was imagining things so it was a relief to talk to him about it...
We have always tried to make sure Hannah was comfortable and don't want her to suffer a lot...please pray for guidance and comfort for us and especially for her...only the Lord knows what is going on with her....and He is in control \o/
Chuck and I talked about this later and he said he thinks that's why he kinda pulls away with things pertaining to her...and I can be a little obsessive, so pray for us to find a balance. I feel like I am alone most of the time with making decisions and anything with to do with taking care of hannah.
I am getting burned out again...haven't had anytime away for over a year...except in the fall chuck and I went to see jenn and bob in VA but were only gone for 1 1/2 days...it's harder to get away now that I have taylor too...my dr wants me to go back to aqua therapy for my arthritis and fibromyalgia but I need someone who could watch taylor for me thos couple hours a few days a week :) I am so blessed to be able to take care of taylor but she does wear this old grami out :) she is such a blessing and a sweetheart and so much like her aunt jenn when she was a baby :)
Our nursing is changing, Alice has moved but still working here for now and Patti is moving...pray that we can work out the hours with the other nurses for good coverage and hours to satisfy everyone :)
Thank you for the continued prayers for us...
Monday, April 6, 2009
Serious Life Magazine
The magazine includes a lot of great content from bloggers you’ll appreciate, as well as great features, photos and other content. The magazine is owned and published by a family who have seven kids, three adopted and one who has Leukemia (www.riggsfamilyblog.com). The magazine gives away a bunch of ads to charities and ministries. Besides great articles on interesting people, there is a lot about family, adoption, personal finance, spiritual life, humor… all sorts of “life” topics.
Again, the subscription is FREE, and I know you’ll enjoy the magazine, so take a minute to check it out and sign up to get future issues. www.seriouslifemagazine.com
Friday, March 27, 2009
no nursing again :(
joan
Tuesday, March 17, 2009
ok, I guess I should have looked at the calendar...they did find hannah a nurse for wed night, but I forgot our sweet alice was on vacation for tonight! we have our LIFE cell (small group meeting tonight here. so far, at 4 pm, they haven't found one...this is getting old, real fast!
so far, today has been a not too bad day with seizures :)
Taylor is getting so cute, she is saying mama now...she weighs 18 1/2 lbs and hannah weighs 34 lbs!
here are some new pics of the girls and one of my 4 yo nephew josh on his bd in his new "cars" bed..he just loves it!
Monday, March 16, 2009
Hannah update
wed night we don't have a nurse so far, our usual nurse wants her bd off....not sure why she can't work since she only works 2 days a week anyway...so please pray that someone will be able to work...this is getting real old...and in the middle of the week is really bad :(
continue to pray for sean, her nurse...he has tuberculin meningitis and is still in ICU.
Hannah has been having more seizures lately, and some of them are a little different...
I have to take both girls to hannah's Medical
assistance review tomorrow (by myself) and 2 appts for me on wed and friday...so I may have to take both girls to everything...please pray for me :)
thanks for your continued prayers for hannah.
Wednesday, March 11, 2009
Jordan Essentials*bath*body*spa*
I am really excited about our new product launch this saturday for
*Jordan Essentials*bath*body*spa*. I love all of our products and it's such a great Christian company to work for...I have been a consultant for 2 years now, the time really flies.
Now, is a great time to have a "girls night out" spa show. We can do facials, foot spas, hand spas...anything that would be fun for you...you can earn free products and right now with the economy the way it is, we can all use "free"!!!
check out my webstore www.jordanrep.com/10282 or call me or email me...
family updates
Taylor has been sick with a cold so I have been really washing my hands a lot between the girls. Taylor is still running a slight temp and lots of secretions but now Hannah has a cough and more sceretions and a slight temp...pray that neither one of them gets worse.
BTW, please continue to pray for hannah's nurse Sean, he has been very sick for a couple weeks and the last I heard he was still in the ICU. He is our fill in nurse and also works every other Friday night..I just found out that he has spinal meningitis.
jenn & bob will be here later tonight...it will be nice to have them home for a couple days..I really miss them but know that they are following the Lords will where they are.
taylor is now an "independent" sitter...she can move around a lot while sitting and just loves to play with toys...she laughs and smiles a lot at things....even my singing she smiles at :)
we started having LIFE cells from our church a couple weeks ago..we are having it here since it's hard for us to get out with Hannah. This way we don't have to rush and if the nurse calls out, we are right here. we have a great group and I am geting to know a few people a lot better than before...I only get to church on sunday mornings...I can't got to sunday school, sunday nights or wed nights, so this is really helping me get "connected" with other Christians.
Thursday, February 19, 2009
This is hi/lo thurs on the riggs blog for abby.
My hi for today is that I get to keep my grandaughter Taylor everyday:)
and my lo is that her mommy had to take her to the dr to see if she has an ear infection :(
Wednesday, February 18, 2009
pray for me, pray for others
Please pray for Gavin
http://gavinowens.blogspot.com/
thanks
joan
Tuesday, February 17, 2009
laughter lives tuesday
My sister's kids are always saying cute things....the lady at the bakery dept gave my 3yo nephew josh and his 2yo brother hunter a cupcake...hunter made such a mess that the lady had to clean him up...she asked josh if he wanted her to clean him up too but he told her no, he would use his tongue! LOL
Friday, February 13, 2009
no nurse tonight!
she does have a lot more secretions than usual today and so does taylor so please pray for them and that they will find a last minute nurse for tonight…
Joan
Wednesday, February 4, 2009
Taylor pics and video
Ok, the girls keep me so busy I don't even get all my email read much less post on here. Taylor is 5 months old now and loves playing with everything and everyone. She is such a sweet little baby. She can get really noisy sometimes. Since hannah is so quiet, it is music to my ears.
Yesterday jenn turned 26 so now both our older girls are in their late 20's...that makes us sound old LOL
I took some pics and video of taylor.
Sunday, February 1, 2009
Wednesday, January 28, 2009
Saturday, January 24, 2009
seizures and a vent
Hannah's seizures seem to be a little more intense lately. I hate seizures. Hannah has had them since she was a baby. Now she has been on almost every seizure med or variation of it except one called felbatol. That one has a lot of side affects that I don't like, such as aplastic anemia. I am still praying about that one.
I think I just need to vent a little Hannah has medical assistance because our income is not counted, it's a waiver. I know times are tough everywhere but now it's hitting medicade. They have cut back on how much they pay per diaper so now after all these years we have all of a sudden had to go from super absorbent overnight type diapers to thin little diapers that are thinner than a chux. They are not even half the weight of what she was using...what is next, are they going to take away our nursing hours? Now, we have to change her and her clothes more often. For the first time this week, Hannah smiled when I put Taylor in her lap. Hannah doesn't smile very often like she used to. There were a lot of things she did before seizures and meds took so much out of her. Taylor loves laying at the end of Hannah's bed when I do things for Hannah...she plays with her Hannah's stuffed animals.
Cathing Hannah's urine is becoming routine for me. but she looks a little swollen right now. we are still getting anywhere from 50 to 300 cc's each time, even after a wet diaper. I need to call urology to find out what is next. I keep forgetting to call them and a few other drs for appts.
Hannah is still having thick secretions and some desats when she is off her vent. But, they usually go back up on her own. We are thankful for our nurses, some have been getting sick but so far, we have been ok.
I realize now how much I did get done when it was just me and hannah because now, with Hannah and Taylor, I don't get anything done. but I wouldn't change it for the world. I am so blessed to be able to take care of Taylor and watch her change everyday. she is growing too fast and I can't clean, etc when she is older I am selfish and don't want my grandaughter going to day care. I do pray that becky can eventually stay home with Taylor but will continue to enjoy it for now.
Chuck has been traveling a lot lately for work. he will be gone again this week. Pray for him as he travels. He has been going to the really cold places too!
joan
Friday, January 23, 2009
Saturday, January 3, 2009
Happy New Year 09 \o/
Taylor turned 4 months old on New Years Day...every day she is doing more and more...her newest thing is kind of a giggly squeal, she has found her voice...she also likes to help hold her bottle but the problem is she likes to pull it in and out...she is too nosey to eat when she is out somewhere, afraid she is going to miss something :)
she goes for her 4month check up this thurs, so it will be interesting to see how much she has grown.
enjoy the pics