My loves

My  loves
Our family

Friday, January 28, 2011

Hannah nephrology appt 1/25

I took Hannah back to the nephrologist on tues. at 10 am.  this time it was a  different dr and I really liked him.  they saw us first and we discussed everything and then they sent us to hematology to get bloodwork done since the hematologist wanted some blood too...they can draw it from the central line...they needed so much blood, the nurse joked that she was a vampire for the day :)  they told us to go back in  1 1/2 hours to check the results...we did some visiting, ate lunch and went back, blood was still "cooking" we waited and went back again...still nothing...finally they got the results...and were a little dissapointed..her creatinine was up to 1.5...when we left the hsopital it was 1.3  and two weeks ago it was 1.0.  they couldn't figure out why!  Her potasioum was a little high o they stopped that for now.  Her hemoglobin was up to 11 so we gave her the last does of epigen/procrit today (hopefully).  On the way home they called and said her calcium was high now too so stop one of her calcium supplements and hopefully that is why the creatinine was high.  but in case they are missing something, I have to take her back next week to have a renal ultrasound and more bloodwork done.  We finally left the hospital around 2:45 :(  so much for going out to lunch and shopping...I just felt bad for my mom, becky and logan because they had gone with us...and if I knew we were going to be that long waiting, I would have visited a few more friends!
 We are going back on thurs, this time...tuesday while the nurse is here with Hannah I am going to help becky take taylor and logan to the dr for check ups...
   Our nursing is having a few bumps. the sunday night nurse is not back so they are having a couple different nurses work. and tuesdays are confusing right now too...
  Hannah seems to be back to her baseline but she is having a few episodes of things that  I think are seizures but hard to get a diagnosis from the dr since she doesnt do it for them  LOL
And the good news is  her wheelchair was finally approved and has been ordered!  Yeah! she was measured for it in June and was put into MA in august!

Sunday, January 23, 2011

Hannah not feeling well..

Hannah hasn't been feeling good starting yesterday.  She is doing the same thing she does once in a while...starts with hiccups (a lot), face flushing, mouth moving like she is chewing and lots of reason for it starting, don't know if she is sick or what it is..I have tried giving her pedialyte but it doesn't make any diffrence, it could be more cycles of seizures and it could be she can't control swallowing her secretions anymore..who knows?  :)  just a lot of excessive we stayed home from church today, we miss it. 
  Other than that she is almost back to her "normal"  Sodium levels are still low and some of her other labs are off...we see nephrology (kidney dr) on tues.

Thursday, January 20, 2011

Two Tickets to the Christmas Ball book review

Product Description

Can mysterious matchmaking booksellers bring two lonely hearts together in time for Christmas?
In a sleepy, snow-covered city, Cora Crowder is busy preparing for the holiday season. Searching for a perfect gift, a fortuitous trip to Warner, Werner, and Wizbotterdad’s (a most unusual bookshop) leads to an unexpected encounter with co-worker Simon Derrick. And the surprise discovery of a ticket for a truly one-of-a-kind Christmas Ball.

Every year, the matchmaking booksellers of the Sage Street bookshop host an enchanting, old-fashioned Christmas Ball for the romantic matches they’ve decided to bring together.

This year, will Simon and Cora discover a perfect chemistry in their opposite personalities and shared faith? Or will the matchmakers’ best laid plans end up ruining everything this holiday?

About the Author

Expertly weaving together fantasy, romance and Biblical truths, Donita K. Paul penned the best-selling, fan-favorite DragonKeeper Chronicles series. After retiring early from teaching, she began a second career as an award-winning author and loves serving as a mentor for new writers of all ages. And when she’s not putting pen to paper, Donita makes her home in Colorado Springs and enjoys spending time with her grandsons, cooking, beading, stamping, and knitting.

This was a very enchanting book about two coworkers who get to know each other better through unusual circumstances.  The characters are charming and you want to make friends with them right away.  A fun read.  My daughter was in the hospital and this was the perfect book to get lost in.

Friday, January 14, 2011

Some new pics

                                                                Papa and Jonas
                                                 Hannah raven's fan on purple friday
                                                          Jonas 10 weeks old today

Hannah's appts with neuro, ortho and nephrology tues 1/11/11

We had a long day tues.   Neurology was quick, no changes.
  then we saw ortho for her post op appt.  They said her incision looks really good.  She still cringes a little when I move her but he said that is normal 6 weeks post op, we would still be in bed!  I mentioned how her right knee keeps going out to the side, it seems to be doing it a lot more lately.  Her hips and knees are constantly popping out of their sockets.  She is missing the ACL in both knees and something else but I can't remember.  We go back in two months
  the last appt was with nephrology and that took forever because they couldn't find where her bloodwork results were.  The nurse finally tracked them down.  They were done 1 week after discharge.  Most of it looked good, her BUN was 41 at the hospital and had gone down to 11.  Her creatinine went from 1.3 to 1 but he would like that a little lower.  Her hemoglobin was 7.7 but only went up to 9 so they want us to keep doing all the  extra meds for right now.  I have to take her back in two weeks. The nurse drew more blood today.
 While we were there we got to see a couple friends who had kids inpatient.  We saw a few people from the r mcd house and got to visit the rehab floor she was on.  When we went through the door, the social worker and a couple people were there, they said, I hope you are just visiting  :)  It was good see them for only a few minutes.

Logan off oxygen doing better

Here is a pic of Logan in becky's room  off the oxygen

  He doesn't look like Taylor at all.  His middle name is Bruce after Todd's dad and he looks like him!

Logan Bruce 1/12/11

Logan was born wed Jan 12.   6lb 14.8 oz  19" long   He was a planned c sect but when becky got to the hospital she was already 6cm dilated..she knew she was in labor but not that far, she had already had an epidural with taylor when she was 5!  surgery went good but they noticed Logan was having trouble breathing.  They put him on oxygen and from a chest xray found that he had a pneumothorax.  That is air trapped outside the lung that causes the lung to collapse.  Becky only got a glimpse of him as they took him away.  It was a 15% blockage.  they kept him in the nursery on O2 and we could only look at him and touch him, couldn't pick him up :(  thursday they were able to turn his O2 down and the xray showed it had resolved some.  by that evening he was off the O2 and becky was able to have him in her room and nurse him.  The nurses all remarked about how laid back is is...becky said he likes to cuddle and nurse, totally different than Taylor, she has always been afraid to miss something  LOL  I didn't get to go see him today so I haven't been able to hold him yet, hopefully tomorrow!  they are supposed to come home then.  Taylor got to see him but got mad when she couldn't touch him. 

Sunday, January 2, 2011

Glad to be home...

                                                                waiting to go home
                                                    finally in the van
We got home about 6:30 Wed night.  we were hoping to get home sooner but little things kept popping up at the hospital.
We were waiting for the elevator when the social worker and nurse caught us...they gave us a scrip for heparin for the central line and told us to take it down to the there and they don't take out of state MA so back upstairs we went.  After waiting for social work a nurse handed a bunch of it to me and said this was  left in your closet. :)  so finally we got to leave.  With a lot of extra meds  etc.  I hadn't realized how many they would send us home with.  In  addition to her regular meds she now gets, calcitrol, iron, prevacid, calcium carbonate, culturelle, folic acid, one dose of levaquin, epigen IV and flushing her central line daily.  I had to give her one epigen shot but they prefer the IV so a  nurse will start coming tomorrow.  the heparin came from the infusion company thurs but the saline flushes and epigen didn't come yet...pray it comes before the nurse comes tomorrow.
  Hannah is doing better.  Saw her pediatrician on friday, they were all excited to  see her. they had been following her progress on fb. One of my daughter Jenn's fb friends works in the drs office.
  She is having a little edema on her left foot, watching that, her last dose of lasix was before we left the hospital.  She was running a temp to but that is gone, thankfully.  She is anemic (for the first time) and really looks pale.  Seizures are better.  She is sleeping good.  We did get to go back to Church today and it felt really good to be lots of good hugs.  We missed everyone.
  I am still trying to get everything put away from the hospital and hopefully I will get to clean tomorrow...thankful that chuck wasn't here much and the mess he made he cleaned up.  Today it felt more like our old routine.
                                                            asleep in her own bed