My loves

My  loves
Our family

Wednesday, July 27, 2011

Hannah is a blue rose

My sister Pam gave Hannah this blue rose blanket for her bd to go with this story

         Blue Rose

Having four visiting family members, my wife was very busy, so I offered
go to the store for her to get some needed items, which included light
bulbs, paper towels, trash bags, detergent and Clorox. So off I went.

I scurried around the store, gathered up my goodies and headed for the
checkout counter, only to be blocked in the narrow aisle by a young man
appeared to be about sixteen-years-old.. I wasn't in a hurry, so I
waited for the boy to realize that I was there. This was when he waved
hands excitedly in the air and declared in a loud voice, "Mommy, I'm

It was obvious now, he was mentally challenged and also

startled as he turned and saw me standing so close to him, waiting to
squeeze by. His eyes widened and surprise exploded on his face as I
"Hey Buddy, what's your name?"

"My name is Denny and I'm shopping with my mother," he responded

"Wow," I said, "that's a cool name; I wish my name was Denny, but my
name is

"Steve, like Stevarino?" he asked.  "Yes," I answered. "How old are you

"How old am I now, Mommy?" he asked his mother as she slowly came over
the next aisle.

"You're fifteen-years-old Denny; now be a good boy and let the man pass

I acknowledged her and continued to talk to Denny for several more
about summer, bicycles and school. I watched his brown eyes dance with
excitement, because he was the center of someone's attention. He then
abruptly turned and headed toward the toy section.

Denny's mom had a puzzled look on her face and thanked me for

taking the time to talk with her son. She told me that most people
even look at him, much less talk to him.

I told her that it was my pleasure and then I said something I have no
where it came from, other than by the prompting of the Holy Spirit. I
her that there are plenty of red, yellow, and pink roses in God's
however, "Blue Roses" are very rare and should be appreciated for their
beauty and distinctiveness. You see, Denny is a Blue Rose and if someone
doesn't stop and smell that rose with their heart and touch

that rose with their kindness, then they've missed a blessing from God.

She was silent for a second, then with a tear in her eye she asked, "Who

Without thinking I said, "Oh, I'm probably just a dandelion, but I sure
living in God's garden."

She reached out, squeezed my hand and said, "God bless you!" and then I
tears in my eyes..

May I suggest, the next time you see a BLUE ROSE, don't turn your head
walk off. Take the time to smile and say Hello. Why? Because, by the
of GOD, this mother or father could be you. This could be your child,
grandchild, niece or nephew. What a difference a moment can mean to that
person or their


From an old dandelion!
 Live simply. Love generously. Care deeply. Speak kindly. Leave the rest

Monday, July 18, 2011

Hannah's sweet 16 party and pics

Wow, we are so overwhelmed with all the people that came to Hannah's party on saturday...she was given so many cards, gifts, money and gift cards and she didn't need any of it...we will probably use it to make some needed modifications to our hallway from her room to the bathroom!
  Our friend Patti flew in from S Carolina on wed.  She was Hannah's nurse until she moved away a couple years ago.  She did everything including all the food, a cake, decorated cookies for everyone to take home.  I couldn't have done any of it without her! 
  there is a great organization called Icing Smiles Inc  that gets bakers to make cakes for kids who are frequently hospitalized.  They found a wonderful lady in Newport News VA to make Hannah's cake, she drove over 4 hours one way to bring it to us
The cake was beautiful and we so much appreciated all that Schonna did to get it here.

  there must have been at least 80-90 people there!  I have a lot of pics on my facebook page, see if this link works  I will add a few here  but there are hundreds of great pics and I have almost 90 on facebook
hannah and the Icing smiles cake

Patti and I, thank you so much Patti

both cakes with their matching colors

Hannah and Schonna that made the cake, thanks again!
our family minus our son in laws, again.

Saturday, July 9, 2011

Hannah is sweet 16 today!

Hannah 7/95
Hannah 7/11

 Hannah at birth 7/95

Wow, so many emotions are attached to Hannah turning 16yo. I think this bd is hitting me harder than any other.  There are so many things that she should be doing at  16...driving, dating, arguing with us about clothes and boys...she should be thinking about graduation and where she is going to college...but instead Hannah is a 2 mo baby in her development...she is deaf/blind so that limits a lot of what she learns...she has no idea it's her bd and we have no idea what to buy her,  it would be so nice to be able to communicate with her, instead we have to watch her and figure it out...even a baby can let you know with his cry.  She doesn't go to school because she would always be sick...the only place she goes most of the time is Church on Sunday and to the dr. She has to have someone watch her 24/7.  I am sad for the things she can't do and won't do...but I am thankful for everyday we have with her, and am thankful that she is such a fighter and has defied all the odds when she was born...we never thought we would see her turn 16 but that is another milestone passed...and I am thankful for all the people we have met, drs, nurses, therapists and teachers....and so many lives she has touched by just being here...I once said I believe she is here to love and be loved, and that is still true!
  Don't forget her 16th bd party is next saturday the 16th. We never have a party for Hannah after the rough year we have had this was a perfect way to thank everyone for praying for her.  So far I have almost 80 names on the list that are coming..the invite is going to be in the church bulletin tomorrow.  so if I have neglected to invite you please know that you are welcome to come..just let me know early this week.