need prayer for nursing!

Just a quick prayer request....hannah's new nurse michele works for us 4 nights a week...she has to go to a funeral in FL and is going to be out thurs, fri and sunday! please pray that they can find someone...we are the most worried about thurs and sun...she is also going on vacation the last week in sept and will be gone the whole week...
will try to update more later :)

Quintooples are giving away a water bottle...I love give aways

GIVEAWAY!!! In honor of "Back to School!"
Quintooples is proud to giveaway one Kleen Kanteen with a sport top for you, or your back to schooler! These are not your ordinary re-usable water co...ntainer.Our 18 oz. Klean Kanteen is the safe, reusable bottle you’ll take with you everywhere...
http://www.quintooples.com/

need to vent :)

I had a drs appt today for myself...I have fibro and arthritis but lately have been having a lot of back problems. He prescribed a muscle relaxant but said nothing is going to help without PT. I used to go to PT at aquacare for the pool...did it 2 -3 times a week for 3 years in the pool...it made the biggest difference in my pain level...but I haven't been in a year, since taylor was born...I don't see how I can go with her, she is too busy and needs to be entertained...I can go when the nurse is here with Hannah but need to find someone to go with me to play with taylor or to watch her here...please pray that I can find someone..it's really frustrating.
I need to get a large gate to keep taylor out of the kitchen but can't even find time for that now..I did stop at walmart on the way home but they didn't have any wide ones, just for a standard door...if I go anywhere tomorrow, I have to take both girls...I could meet my mom but she can't really help me getting them in the car, she can just open the back end and push taylor...so it's a lot of lifting :( I need to get groceries too but the nurse doesn't come in til 10pm 2 nights...this is getting really old...
soory, guess I just needed to have a pity party :)

back from FL and Hannah's week

I had a great time in FL...I didn't do anything! I tried to sleep late, took a couple naps, read, played on the computer...mom was with me and we didn't keep a car except for Thurs...my sister pam was taking us out shopping and to dinner after work and thurs we went to the movies to see "the proposal" It was hilarious...the last movie I saw in a theater was the little mermaid, when becky and jenn were little (they are 26 & 28 now) I went for a walk on the beach with blue pam on monday and we looked for sea turtles. We saw lots of nests and a couple egg shells from where predators had attacked the nests...that was sad. I thought is was interesting to learn about them...I brought taylor back a shirt with a pic of the turtles and the shells. There were some nests that should be hatching soon. The lady there told me that we should have a lot of them here in MD...we don't get to go to the beach very often but next time I will look for them...I didn't go out in the sun, I am too "white" for the FL sun...we did go to the pool a couple times, in the late evening or early morning.
The whole point was for me to relax and pam and blue pam made sure that I did. blue pam gave up her bed for me. I did miss my family and it felt good to be home..can't be in 2 places at once :(
Hannah still seems to be fighting something, her secretions are still thick and a lot of them. Her temp goes up and down...I got home late friday night and sat I could tell that I was picking her up again...my back started aching again and all the old aches and pains came right back. I have fibromyalgia and some arthritis so having to deal with hannah and taylor takes a lot out of me.
Hannah's seizures are about the same. She hasn't been sleeping hardly at all the last 2 days but it looks like she is finally asleep now, at 5:30 in the afternoon :)
I am really frustrated about her dental...medical assistance changed their program for dental and now we can't take her to dupont where we do all of her other drs and services. I have called them and MA but no one can tell me anything. If we go out of pocket, it's $230! We can't afford that. I can't imagine taking her to a local dentist with all of her dental problems...she has a partially repaired cleft lip and palate and teeth coming in the wrong places. If she needs any kind of dental surgery and we go locally, I don't know how that would get done. Now, even her plastic surgeon is connected to dupont...please pray for that.
Taylor has decided today that walking just might be easier than crawling...she has been walking a lot more today. She will be 1yo on sept 1. She was born on labor day last year!
Gotta go, we have our LIFE cell group meeting here tonight...

Hannah update and me going to FL!!!

Hannah has been doing pretty good lately except for her seizures…for the last couple days she has been coughing a lot more than usual though…I just checked and her temp is 99, and her secretions are a little thicker…normally I wouldn't be worried but I am leaving in the morning to fly to FL to take my mom to visit my sister….hannah's nurse is going to be here with her during the day, thank you patti! So, please pray that she isn't getting sick right now and for us to not worry :) I know she is in good hands but you know how that mommy feeling is…chuck will be alone with her a lot tomorrow (Sunday) afternoon and he doesn't take care of her very often without me. I will be home late Friday night.
A new concern is dental…MD medical assistance has changed their dental program and it looks like dupont is not accepting it now. I think it's important for her to have her dental work done there since that is where all her other drs are and if they need to pull teeth they can do it there. She has an appt on the 19th so pray that we can find a way to have her appt there.
Our nursing is better right now but our newest nurse is working the extra hours that we have and I am not sure she wants to do all of that permanently so please pray they can find a permanent replacement…thanks