Hannah is still on dialysis, no urine yet, but they are going to try taking her off it for a while (when her weight goes down some more) and see how she does. Her swelling is going down a lot and they are taking a lot of fluid off her with the dialysis. thanks so much for the continued prayers. If you want to call me you can private message me and I will give you the phone #
She is still on pain meds and valium for seizures so she is still sleeping a lot, that's good because I would be afraid she would pull some of the wires and tubes out. She had a really low rectal temp today so she is under a nice bair hug warming blanket.
My youngest blessings are our youngest daughter Hannah who is sweet 16yo and has a rare chromosome deletion (1q 24.1-31.1). Taylor is our first grandchild born 9/1/08. Or first grandson Jonas was born 11/5/10 Taylor's little brother Logan was born 1/12/11
My loves
Our family
Saturday, December 4, 2010
Friday, December 3, 2010
Hannah update
surgeon was just in and changed Hannah's dressings on her back, everything looked really good. She is doing like she should 4 days out from surgery except for the dialysis, still no urine.
Thursday, December 2, 2010
Hannah Thurs update
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| Hannah sedated and swollen from surgery |
peaceful but swollen
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| where the dialysis catheter goes into he groin |
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| some of the lines going in her body |
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| her dialysis circuit close up |
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| with her Christmas snuggie mom mom made her |
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| another view |
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| the bags at the bottom |
I waited for them to do rounds today before updating. Hannah is in acute renal failure, the renal dr thinks that something happened to her blood flow to stop her kidneys and she thinks they will eventually start working again, she has to stay on dialysis(and in the PICU) til she starts making her own urine, they are cathing her every 12 hours but still no urine.
Other than that she is doing like she should be 3 days post op from her spinal fusion. Most of her swelling is from that.Wednesday, December 1, 2010
Hannah update
just realized I didn't get a chance to update here last night, facebook is so much easier to post quick updates, sorry. so I am going to try to put the all here.
last night
so far Hannah's lungs are still clear, it's just the outside of her body that is puffy..the dr explained they don't do dialysis for cosmetics :) we need to continue to pray for her kidneys to start working again. This was a good article about kidney function http://www.medicinenet.com/kidney_failure/article.htm hey are going to start the dialysis tonight before she gets into crisis mode...her BUN and creatinine levels are higher now. they were starting dialysis when I left. Hannah is ok and so am I. this is from this morning
just got here, no big changes today :) she is on dialysis for now. I feel like I have to say Hannah is not dying her kidneys just decided to stop working for now. thanks so much for the continued prayers! I am really at peace with everything and know that she is getting the best care she can right now.
last night
so far Hannah's lungs are still clear, it's just the outside of her body that is puffy..the dr explained they don't do dialysis for cosmetics :) we need to continue to pray for her kidneys to start working again. This was a good article about kidney function http://www.medicinenet.com/kidney_failure/article.htm hey are going to start the dialysis tonight before she gets into crisis mode...her BUN and creatinine levels are higher now. they were starting dialysis when I left. Hannah is ok and so am I. this is from this morning
just got here, no big changes today :) she is on dialysis for now. I feel like I have to say Hannah is not dying her kidneys just decided to stop working for now. thanks so much for the continued prayers! I am really at peace with everything and know that she is getting the best care she can right now.
Tuesday, November 30, 2010
hannah kidneys shutting down!
Hannah was doing well when we left last night. I got here about 9 this morning and was shocked at what I found...they were doing a renal ultrasound on her because her kidneys have shut down. they can't find a reason why, they thought it might be a blood clot but it wasn't. they think it's from the surgery but that never happens they are shocked here too. so far her lungs are clear but with the fluid overload, it's just a matter of time the dr said she is just going to get sicker before she gets better...she may have to go on dialysis if it doesn't resolve it's self.
she is also testing positive for MRSA again so everyone has to put on gowns.
she is also testing positive for MRSA again so everyone has to put on gowns.
hannah kidneys shutting down!
Hannah was doing well when we left last night. I got here about 9 this morning and was shocked at what I found...they were doing a renal ultrasound on her because her kidneys have shut down. they can't find a reason why, they thought it might be a blood clot but it wasn't. they think it's from the surgery but that never happens they are shocked here too. so far her lungs are clear but with the fluid overload, it's just a matter of time the dr said she is just going to get sicker before she gets better...she may have to go on dialysis if it doesn't resolve it's self.
she is also testing positive for MRSA again so everyone has to put on gowns.
she is also testing positive for MRSA again so everyone has to put on gowns.
Monday, November 29, 2010
out of surgery!!!
Hannah is out of surgery...we saw her xrays and she was a lot worse than we realized. they said her pelvis was off the table when they finished :) we should be able to see her in less than an hour. She did well. He did say she had some kyphsis that barely moved before. will post more later or tomorrow!
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