My youngest blessings are our youngest daughter Hannah who is sweet 16yo and has a rare chromosome deletion (1q 24.1-31.1). Taylor is our first grandchild born 9/1/08. Or first grandson Jonas was born 11/5/10 Taylor's little brother Logan was born 1/12/11
My loves
Thursday, April 29, 2010
Sunday, April 25, 2010
Hannah - feeling better
Hannah is feeling a lot better now...still coughing some. I think I got it worse than she did but that is good :) it felt good to get back to church today although it was weird this morning not to take Hannah. the nursing agency screwed up again and molly came in late so she stayed til we got home from church.
Her seizures are back to her "normal" ones. we have increased her klonopin again. usually that makes her really sleepy but it's almost like she is getting immune to it :( we don't have a neuro appt til June. the increase in all her meds is making her kinda drugged during the day just not sleeping like she usually does.
we saw the GI dr last week, I really like her. Hannah's weight was up to 39lbs! that is way too much for her small body :) She is only 40" tall and has a very small head. (on the wii fit board she is a perfect weight ) So, I took her to the peds office to get her official weight, 38 lb 14 oz :) so now we had to decrease her feeding even more. Waiting for a call back from her about adding some protein to her formula. She already added some extra fiber since she is afraid she's not getting enough. She asked about the hiccups and I told her she had only had 2 major episodes since we last saw her. I told her about her gtube site getting red a lot lately. She thinks it's stomach acid and is afraid with some other symptoms that her nissen might be loose or udone. She had ordered an upper GI study when we last saw her but because of the all the bad weather I never had it done, so its now scheduled for the end of may. She added pepcid to her meds to see if it helped, not sure what though LOL
Her seizures are back to her "normal" ones. we have increased her klonopin again. usually that makes her really sleepy but it's almost like she is getting immune to it :( we don't have a neuro appt til June. the increase in all her meds is making her kinda drugged during the day just not sleeping like she usually does.
we saw the GI dr last week, I really like her. Hannah's weight was up to 39lbs! that is way too much for her small body :) She is only 40" tall and has a very small head. (on the wii fit board she is a perfect weight ) So, I took her to the peds office to get her official weight, 38 lb 14 oz :) so now we had to decrease her feeding even more. Waiting for a call back from her about adding some protein to her formula. She already added some extra fiber since she is afraid she's not getting enough. She asked about the hiccups and I told her she had only had 2 major episodes since we last saw her. I told her about her gtube site getting red a lot lately. She thinks it's stomach acid and is afraid with some other symptoms that her nissen might be loose or udone. She had ordered an upper GI study when we last saw her but because of the all the bad weather I never had it done, so its now scheduled for the end of may. She added pepcid to her meds to see if it helped, not sure what though LOL
Monday, April 19, 2010
Hannah is sick :(
Last week taylor got a cold and then becky got it..saturday morning I woke up with it and the nurse said hannah had a rough night. I had been planning on taking her to dr kyle's office for a weight check but ended up having her look at hannah....she said it is probably viral and gave us a scrip for cipro just in case. She had been running a high fever for her and her heart rate was in the 130's.
today she has a temp again and she doesn't want to cough..her lungs had been staying clear but the nurse said she sounds junky right now so she did an extra neb treatment...her cough is very hoarse and sounds really bad with a trach...she hasn't been this sick in a long time.
I am still coughing and congested too but taylor is finally getting better!
today she has a temp again and she doesn't want to cough..her lungs had been staying clear but the nurse said she sounds junky right now so she did an extra neb treatment...her cough is very hoarse and sounds really bad with a trach...she hasn't been this sick in a long time.
I am still coughing and congested too but taylor is finally getting better!
Thursday, April 15, 2010
Forget Me Not by Vicki Hinze
Forget Me Not
by Vicki Hinze
Summary:
A mother who cannot face her future.
THEIR ELUSIVE ENEMIES TOOK EVERYTHING. NOW THEY WANT MORE.
Crossroads Crisis Center owner Benjamin Brandt was a content man—in his faith, his work, and his family. Then in a flash, everything he loved was snatched away. His wife and son were murdered, and grief-stricken Ben lost faith. Determination to find their killers keeps him going, but after three years of dead ends and torment, his hope is dying too. Why had he survived? He’d failed to protect his family.
Now, a mysterious woman appears at Crossroads seeking answers and help—a victim who eerily resembles Ben’s deceased wife, Susan. A woman robbed of her identity, her life, of everything except her faith—and Susan’s necklace.
The connections between the two women mount, exceeding coincidence, and to keep the truth hidden, someone is willing to kill. Finding out who and why turns Ben and the mystery woman’s situation from dangerous to deadly. Their only hope for survival is to work together, trust each other, and face whatever they discover head on, no matter how painful. But will that be enough to save their lives and heal their tattered hearts?
A great suspense book that keeps you on your toes :) you will not want to put this book down...read it and find out the key...
Cover art:
Author Bio:
Vicki Hinze is an award-winning author of twenty-three novels, three nonfiction books, and hundreds of articles. Selected for Who’s Who in America in 2004 as a writer and educator, Hinze is active in Romance Writers of America and serves as a Vice President on the International Thriller Writers Board of Directors. Vicki lives in Florida with her artist husband, a retired Air Force Lieutenant Colonel. Visit www.vickihinze.com to learn more about Vicki’s books, blogs, and writing programs.
Do you have any blogger friends who might like to participate other blog tours? Please direct them to the official WaterBrook Multnomah Blogging for Books site page at http://www.randomhouse.com/waterbrook/bloggingforbooks/.
http://waterbrookmultnomah.com/catalog.php?isbn=9781601422057
This was book was provided for review by WaterBrook Multnomah
Thursday, April 1, 2010
An Absence So Great Blog Tour
An Absence So Great
by Jane Kirkpatrick
While growing in confidence as a photographer, eighteen-year-old Jessie Ann Gaebele’s personal life is at a crossroads. Hoping she’s put an unfortunate romantic longing behind her as “water under the bridge,” she exiles herself to Milwaukee to operate photographic studios for those owners who have fallen ill with mercury poisoning.
Jessie gains footing in her dream to one day operate her own studio and soon finds herself in other Midwest towns, pursuing her profession. But even a job she loves can’t keep painful memories from seeping into her heart when the shadows of a forbidden love threaten to darken the portrait of her life.
This was a good book about looking at the things in your life that you may need to make changes. As Christians we all need to do this once in a while.
http://www.randomhouse.com/catalog/display.pperl?isbn=9781578569816
Author Bio:
Jane Kirkpatrick is an award-winning author of sixteen historical novels, including A Flickering Light, the first part of Jessie Gaebale’s story, and three nonfiction titles. Known for her unique insights into the exploration of community, family and faith of actual historical women, the Wisconsin native and her husband have called their ranch in Oregon home for the past 25 years.
Do you have any blogger friends who might like to participate in our Blogging for Books program? Please send them to this link to register: http://waterbrookmultnomah.com/blogging-for-books/
This book was provided for review by the WaterBrook Multnomah Publishing Group
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