Hannah was doing well when we left last night. I got here about 9 this morning and was shocked at what I found...they were doing a renal ultrasound on her because her kidneys have shut down. they can't find a reason why, they thought it might be a blood clot but it wasn't. they think it's from the surgery but that never happens they are shocked here too. so far her lungs are clear but with the fluid overload, it's just a matter of time the dr said she is just going to get sicker before she gets better...she may have to go on dialysis if it doesn't resolve it's self.
she is also testing positive for MRSA again so everyone has to put on gowns.
My youngest blessings are our youngest daughter Hannah who is sweet 16yo and has a rare chromosome deletion (1q 24.1-31.1). Taylor is our first grandchild born 9/1/08. Or first grandson Jonas was born 11/5/10 Taylor's little brother Logan was born 1/12/11
My loves
Tuesday, November 30, 2010
hannah kidneys shutting down!
Hannah was doing well when we left last night. I got here about 9 this morning and was shocked at what I found...they were doing a renal ultrasound on her because her kidneys have shut down. they can't find a reason why, they thought it might be a blood clot but it wasn't. they think it's from the surgery but that never happens they are shocked here too. so far her lungs are clear but with the fluid overload, it's just a matter of time the dr said she is just going to get sicker before she gets better...she may have to go on dialysis if it doesn't resolve it's self.
she is also testing positive for MRSA again so everyone has to put on gowns.
she is also testing positive for MRSA again so everyone has to put on gowns.
Monday, November 29, 2010
out of surgery!!!
Hannah is out of surgery...we saw her xrays and she was a lot worse than we realized. they said her pelvis was off the table when they finished :) we should be able to see her in less than an hour. She did well. He did say she had some kyphsis that barely moved before. will post more later or tomorrow!
surgery update 3
Latest update...he is almost finished putting the screws in and will then put in the rods. he hopes to be done around 8pm. thanks for the continued prayers, i am still at peace about it all. My mom, becky, taylor and inlaws have been here most of the time. They have all gone now.
surgery update 2
the liason comes out every hour with an update..he just put in the first screw...at least he is done most of the incisions....it's going to be a long day, could last til 8pm! he said he may even have to do one stage and stop and go back in next week...depending on what he finds...anesthesia said she is doing well.
surgery update
at 8:30 this morning
they just took Hannah back for surgery, she has to get a lot of blood products first so it could be up to 2 hours til they can start, he said he likes to take his time so it could be as long as 8pm tonight before she is out. anesthesia said this is a life threatening surgery for her...she is in God's hands and He is in control...
and the dr just started the first inscision around 11:00
Saturday, November 27, 2010
Becky's baby shower & Thanksgiving
Last Saturday, 11/20 I had a small baby shower for becky, she is going to have her second baby on 1/12/11. this is going to be a little boy they are naming Logan. Taylor is their oldest and she turned 2yo on 9/1. There weren't many people here, family and one of her friends, thanks melissa for taking the pics. I didn't have time to plan a big one with Hannah's surgery coming up and not knowing for sure when Jonas was going to be born. It was a nice shower.
Looking forward to my 3grandchild being born, I love being a grami. It melts my heart when taylor says I love you grami!
Jenn, Bob and Jonas came late Sunday night and didn't go home til today, I miss them already, we don't see them enough. Jonas turned 3 weeks old yesterday and is so cute. Taylor was really cute with him and calls him baby Jonas. We were able to spend a lot of time this week with our girls, love that! Both our girls families were here for dinner last night.
We got to visit with chuck's parents on wed night, they loved meeting Jonas for the first time. Thanksgiving day we ate at my mom's. She is going to my nephew's wedding in FL on 12/12 and is going to stay through New Years. we ate a little with J & b before they had to leave and then finished eating with my oldest brother Garry, his wife Pam and his ambulance partner. It was a nice quiet day. I haven't wanted to take Hannah a lot of places this week to keep her healthy for her surgery on monday!
We decided to out our Christmas tree up last Sunday since this week would be too busy to do it, I love having the decorations up early anyway. The only problem was taylor was over a couple times and is obsessed with undecorating everything LOL
Looking forward to my 3grandchild being born, I love being a grami. It melts my heart when taylor says I love you grami!
Jenn, Bob and Jonas came late Sunday night and didn't go home til today, I miss them already, we don't see them enough. Jonas turned 3 weeks old yesterday and is so cute. Taylor was really cute with him and calls him baby Jonas. We were able to spend a lot of time this week with our girls, love that! Both our girls families were here for dinner last night.
We got to visit with chuck's parents on wed night, they loved meeting Jonas for the first time. Thanksgiving day we ate at my mom's. She is going to my nephew's wedding in FL on 12/12 and is going to stay through New Years. we ate a little with J & b before they had to leave and then finished eating with my oldest brother Garry, his wife Pam and his ambulance partner. It was a nice quiet day. I haven't wanted to take Hannah a lot of places this week to keep her healthy for her surgery on monday!
We decided to out our Christmas tree up last Sunday since this week would be too busy to do it, I love having the decorations up early anyway. The only problem was taylor was over a couple times and is obsessed with undecorating everything LOL
Facebook | Joan Collins Jones
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pic of becky at her shower.
pic of becky at her shower.
Monday, November 15, 2010
Hannah appts
Last Friday we saw the pulmonologist. He said he is on call the week of her surgery and to call him if anything is going on so he can admit her a day early if he needs too..good to know, he also suggested increasing her VEST treatments to 3-4 times a day (he called it voodoo LOL)
I got to meet our fb friend Zeke and his mom Lori. He was at dupont to be evaluated for surgery. His condition is life threatening and worse than they thought. Please pray they can get him in sooner for the surgery. I didn't get pics of him and Hannah, he was still in the PICU :( maybe when he comes for surgery I can get pics. He is such a cutie!
the bad part of the day was my van overheating. It started getting cold about 1/2 hour after leaving home, chuck said I probably needed antifreeze. I called my mom since I was on the way to pick her up and she had some antifreeze, I put it in a just kinda watched the gauges but it seemed ok. About 10 minutes after dropping mom back home, the check gauges light came on and I was overheating! I had just looked at mom's and it seemed ok. I called my brother david and he came and brought me water to put in it. I made it home ok but it started getting cold again a couple blocks away. Saturday chuck found a cracked hose and replaced it. Sunday morning, it had leaked all over the driveway. Todd, came over and looked at it after Church and something just needed to be tightened, so far today it's ok. they do still need to replace the hoses but this should be ok since I have to take her back to dupont for her pre surgery work up on thurs! She is also going to be measured for a mini button instead of the mic-key she is using now(that's her gtube, how she gets fed).
It's getting to be really hectic, I can't believe her surgery is two weeks from today! I am having a small baby shower for becky on saturday. Pray that I can get everything done, I am having some problems with a crown on a back tooth and am hoping to get into the dentist on wed while chuck is here working and can keep an eye on Hannah.
I got to meet our fb friend Zeke and his mom Lori. He was at dupont to be evaluated for surgery. His condition is life threatening and worse than they thought. Please pray they can get him in sooner for the surgery. I didn't get pics of him and Hannah, he was still in the PICU :( maybe when he comes for surgery I can get pics. He is such a cutie!
the bad part of the day was my van overheating. It started getting cold about 1/2 hour after leaving home, chuck said I probably needed antifreeze. I called my mom since I was on the way to pick her up and she had some antifreeze, I put it in a just kinda watched the gauges but it seemed ok. About 10 minutes after dropping mom back home, the check gauges light came on and I was overheating! I had just looked at mom's and it seemed ok. I called my brother david and he came and brought me water to put in it. I made it home ok but it started getting cold again a couple blocks away. Saturday chuck found a cracked hose and replaced it. Sunday morning, it had leaked all over the driveway. Todd, came over and looked at it after Church and something just needed to be tightened, so far today it's ok. they do still need to replace the hoses but this should be ok since I have to take her back to dupont for her pre surgery work up on thurs! She is also going to be measured for a mini button instead of the mic-key she is using now(that's her gtube, how she gets fed).
It's getting to be really hectic, I can't believe her surgery is two weeks from today! I am having a small baby shower for becky on saturday. Pray that I can get everything done, I am having some problems with a crown on a back tooth and am hoping to get into the dentist on wed while chuck is here working and can keep an eye on Hannah.
Jonas Evan Boyer!
Jonas was born on friday Nov 5, 10! Jenn's water broke at 3:33 am on the 3rd...we couldn't sleep so called my mom and made plans to leave. Our friend Lori from church is a nurse and if it wasn't for her, we couldn't have both gone down there! She came and worked after her overnight shift on tues night and again on friday, we thought chuck was going to have to come home thurs night, be with Hannah during the day and come back to Va fri night, 5 hours one way! thankfully Lori's schedule got changed. the other nurses filled in extra hours and becky did the weekend, of course she would have rather been with her sister and nephew!
Jenn's labor didn't progress like they wanted it to. After 2 days, they finally had to do a c section :( but jonas was born healthy and they are all doing good. The nice thing was I got to spend a lot of time with Jenn and that's rare for us with them living so far away!
Jonas weighed 8lb 5 oz and was 21.4 " long. He has a lot of brown hair, surprising them since they both had light hair. The pic was taken today, he is 10 days old. I can't wait to see them this weekend, they are coming for Thanksgiving and Becky's shower.
Jenn's labor didn't progress like they wanted it to. After 2 days, they finally had to do a c section :( but jonas was born healthy and they are all doing good. The nice thing was I got to spend a lot of time with Jenn and that's rare for us with them living so far away!
Jonas weighed 8lb 5 oz and was 21.4 " long. He has a lot of brown hair, surprising them since they both had light hair. The pic was taken today, he is 10 days old. I can't wait to see them this weekend, they are coming for Thanksgiving and Becky's shower.
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